Talking with our loved ones about how they want to die is a topic that is not easily discussed. Many of us are in denial about the event or we believe that if we talk about it we are not demonstrating hope for the person's continued life. Medical care practioners often collude in this silence or unrealistic fantasy.
When my mother was diagnosed with terminal cancer years ago (at age 85), her PCP sent her home with the prescription that she should get exercise so she can regain her strength - a "you'll be as good as new" message. When she died from the reoccurence of a stomach tumor two months later, her relatives asked us "What did she die from?"
The Engage With Grace group has constructed this slide to help us start the conversation with our loved ones. I'm including it here as many of us older Baby Boomers have parents and other relatives with whom we need to start the conversation.
This has real consequences. 73% of Americans would prefer to die at home, but up to 50% die in hospital. More than 80% of Californians say their loved ones "know exactly" or have a "good idea" of what their wishes would be if they were in a persistent coma, but only 50% say they've talked to them about their preferences.But our end of life experiences are about a lot more than statistics. They're about all of us.
So the first thing we need to do is start talking. Engage with Grace:The One Slide Project was designed with one simple goal: to help get the conversation about end of life experience started. The idea is simple: Create a tool to help get people talking. One Slide, with just five questions on it. Five questions designed to help get us talking with each other, with our loved ones, about our preferences. And we're asking people to share this One Slide - wherever and whenever they can--at a presentation, at dinner, at their book club. Just One Slide, just five questions.
Let's start a global discussion that, until now, most of us haven't had. Here is what we are asking you: Download The One Slide and share it at any opportunity - with colleagues, family, friends. Think of the slide as currency and donate just two minutes whenever you can. Commit to being able to answer these five questions about end of life experience for yourself, and for your loved ones. Then commit to helping others do the same. Get this conversation started.
Let's start a viral movement driven by the change we as individuals can effect...and the incredibly positive impact we could have collectively. Help ensure that all of us - and the people we care for - can end our lives in the same purposeful way we live them. Just One Slide, just one goal. Think of the enormous difference we can make together.
(To learn more please go to Engage with Grace. This post was written by Alexandra Drane and the Engage With Grace team)

Comments